Thursday, August 22, 2013

Difficult images

I would love to write that things are looking up, but unfortunately I can't. I wrote about the chest x-rays we had done on Calvin last week here but I just got copies of the actual images and thought I would share them, for those of us that are more visual. There are little black pockets on the lower right hand side of the x-ray from 8/18, that are pockets of infection.
x-ray from 8/9/13
x-ray from 8/18/13 showing swollen stomach, infection and very little space in his lungs. No wonder he cant breathe. 

I wanted to see these images because I felt like I needed a visual confirmation of what was happening inside his little body. It was, and still is, extremely difficult for me to look at these, but it gives me some peace in knowing that we have done the right things for him. I have been having extreme mommy guilt about the fact that I had to stop feeding him (he has had ZERO formula for 4 1/2 days now) but seeing the second image that shows how swollen his stomach is and how little space his lungs have, confirmed to me that stopping his feeds was the right choice. His body is not processing fluids (his diapers are almost always dry and he is having no bowel movements) and feeding him was only causing him more pain and discomfort; I know that now based on these images and that gives me a tiny bit of peace. I wish there was more I could do for him, but I don't think that there is anything that we haven't already tried.

I weighed Calvin on 8/15/13 and he weighed 18.4 lbs. I gave him a nice bath and weighed him last night (8/21/13) and he is down to 17.4 lbs. Today his fever is back (100.9) and he looks very pale and blueish. His nurse has told me that the fever is the process of his body shutting down. So...I fear that it's only a matter of time now. This boy is a fighter, for sure, but at this point I'm not sure how or why he is still hanging on.

Thank you all for the continued love and prayers- it means more to me and my family than we can ever express. Please just continue to pray that my baby will have a safe journey home and that he will no longer be suffering and in pain.

10 comments:

  1. This looks a lot like Petra's X-Rays from the NICU. I have copies of all of them on a disc. I am so sorry and we are praying for you.

    ReplyDelete
  2. Cathleen-praying for peace for Calvin and your family. Words can not express how sorry we are that you are going through this right now.
    Cal is so lucky to have you all-you and your family have been strong, brave amazing advocates for him and couldn't be doing a better job.
    Always in our thoughts-
    Love,
    Tom, Lauren and Finn

    ReplyDelete
  3. Sending you my love and prayers...

    ReplyDelete
  4. Sending lots of love and prayers <3 <3

    ReplyDelete
  5. I pray his passing is easy and not scary for him at all. I also pray for you as you surrender his soul back to his creator who loves him even more than you. God be with you

    ReplyDelete
  6. Dear Cathleen--I can't even begin to imagine the heartache you must be going through. Reading your story reduced me to tears. Just know that your beautiful baby boy will always be with you in spirit, and free of pain and suffering.
    You are all in my thoughts and prayers, much love from Australia. ♥ xoxoxo

    ReplyDelete
  7. My heart is breaking for you again and again, sister <3

    Calvin, you are the strongest person I know. And you are sooo SOOO incredibly loved and prayed over by people all around the world. You are a light to so many, as is your wonderful mama. Every minute you are with us is a blessing to us, but it will never be enough. I know there is a greater plan for everything in this world, but my heart just hurts to think of the empty arms that will be here when you are with the angels.

    We love you so much <3 <3

    ReplyDelete
  8. Sending thoughts and prayers to you, your family, and of course your sweet Calvin

    ReplyDelete
  9. Calvin I am so sorry for you baby boy!! I hope that you have a peaceful passing just know that you will always be loved!! God your creator will care for now and always and you will look over your family and mother till it is time for them to come be with you in heaven. You are a blessing and the biggest fighter that I know. I will have you in my prayers and my family will be praying for you. Now you go be your mama's guardian angel and keep her safe just like she has done for you. Love you and your family.

    ReplyDelete